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Racefor7 – Washington DC
February 24 @ 9:00 AM - 1:00 PM
You are invited to our flagship event is Racefor7 which is held on the last Sunday of February each year. Racefor7 is a 7000 Meters walk for the cause of over 350 million patients with rare diseases with a significant public health burden globally. The run occurs simultaneously in 5 metro cities in India and 4 cities in USA (Washington DC, Greenville, SC, Dallas, TX, Fremont, CA) on Sunday the 24th, Feb 2019. The walk in USA will extend an international chain of ~7000+ participants in India. Racefor7 symbolizes the 7000 rare diseases with 7000 people walking for 7000 Meters. The average time to diagnose a rare disease patient is 7 years and Orphan drug Act provides a 7 yr market exclusivity for orphan drugs approved by FDA. The event emphasizes the urgency of diagnosing patients with undiagnosed conditions and the need to bring new medicines for 95% of the rare diseases with no approved treatment.